This application proposes to design, test, field, and disseminate a new National Study of Disability Trends and Dynamics (NSDTD) to: (I) promote scientific inquiry into late-life disability trends and dynamics, their antecedents and correlates, and disparities therein, and (II) advance study of the social and economic consequences of late-life disability for individuals, families, and society. To achieve these aims, a multidisciplinary consortium with experience in disability measurement, survey design and operations, and dissemination will: (1) Design and test, using state-of-the-art survey methodology: (a) a comprehensive, validated disability measurement protocol that includes self-report and performance-based measures of functioning;allows disaggregation of activity limitations into impairments, the environment, and compensatory strategies;and includes measures of social participation;(b) questions to assess the interplay of disablement with treatment of health conditions and self-care strategies;(c) questions on key economic and social consequences of disability including living and care arrangements, medical and long-term care expenditures, and other aspects of economic well-being and quality of life;(d) measures, largely harmonized with existing surveys, to allow investigation of racial/ethnic and socioeconomic disparities and the intervening role of other key risk factors in trends and trajectories;and (e) modules that will be randomly assigned to subgroups of respondents that will allow cross-walks to disability measures in the NLTCS and other major surveys. (2) Collect data in person from a sample of 12,000 Medicare enrollees ages 65 and older, resurvey them at annual intervals, and refresh the sample at 5-year intervals. (3) Conduct methodological studies to validate the enhanced disability protocol, lay the groundwork for a biomarker supplement, and improve the quality and efficiency of data collection. (4) Implement a process whereby external investigators propose new data collection modules. (5) Provide linkages to mortality data and external databases that enable analyses of disability and long-term care related public program expenditures, movement through the medical and long-term care system, the supply and quality of medical and long-term care, and the role of public long-term care policies. (6) Clean, document, and disseminate public use and restricted data files. A high priority will be placed on timely distribution of high-quality, user-friendly, and well-documented data files and on building a broad user base.
The NSDTD will be a platform for scientific inquiry to guide efforts to reduce disability, maximize functioning, and enhance older adults'quality of life. It will foster research to design multi-factor interventions to reduce late-life disability, and will support comprehensive modeling of outcomes of the disablement process including living and care arrangements, expenditures, economic well-being, and quality of life.
|Berridge, Clara; Mor, Vincent (2018) Disparities in the Prevalence of Unmet Needs and Their Consequences Among Black and White Older Adults. J Aging Health 30:1427-1449|
|Dong, Liming; Freedman, Vicki A; Sánchez, Brisa N et al. (2018) Racial and ethnic differences in disability transitions among older adults in the United States. J Gerontol A Biol Sci Med Sci :|
|Wolff, Jennifer L; Mulcahy, John; Roth, David L et al. (2018) Long-Term Nursing Home Entry: A Prognostic Model for Older Adults with a Family or Unpaid Caregiver. J Am Geriatr Soc 66:1887-1894|
|Harris, Daniel; McNicoll, Lynn; Epstein-Lubow, Gary et al. (2018) Association between anxious symptoms and sleeping medication use among US older adults. Int J Geriatr Psychiatry 33:e307-e313|
|Singh, Tanvee; Bélanger, Emmanuelle; Thomas, Kali (2018) Is Fear of Falling the Missing Link to Explain Racial Disparities in Fall Risk? Data from the National Health and Aging Trends Study. Clin Gerontol :1-6|
|Braley, Tiffany J; Dunietz, Galit Levi; Chervin, Ronald D et al. (2018) Recognition and Diagnosis of Obstructive Sleep Apnea in Older Americans. J Am Geriatr Soc 66:1296-1302|
|Wolff, Jennifer L; Mulcahy, John; Huang, Jin et al. (2018) Family Caregivers of Older Adults, 1999-2015: Trends in Characteristics, Circumstances, and Role-Related Appraisal. Gerontologist 58:1021-1032|
|Simning, Adam; Seplaki, Christopher L; Conwell, Yeates (2018) The association of a heart attack or stroke with depressive symptoms stratified by the presence of a close social contact: findings from the National Health and Aging Trends Study Cohort. Int J Geriatr Psychiatry 33:96-103|
|Simning, Adam; Caprio, Thomas V; Seplaki, Christopher L et al. (2018) Patient-Reported Outcomes in Functioning Following Nursing Home or Inpatient Rehabilitation. J Am Med Dir Assoc 19:864-870|
|Riffin, Catherine; Van Ness, Peter H; Wolff, Jennifer L et al. (2018) Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers. J Am Geriatr Soc :|
Showing the most recent 10 out of 98 publications