The World Trade Center Health Registry (WTCHR), the largest post-disaster exposure health registry in U.S. history, is following a diverse cohort of 71,437 directly affected people who performed 9/11-related rescue/recovery work or lived, worked or attended school in lower Manhattan on 9/11/01. The goals are to identify the long-term physical and mental health effects of the 9/11 WTC disaster;disseminate findings and recommendations to enrollees and others exposed, the public, and the scientific community;share information about 9/11-related resources and services;and inform healthcare policy and disaster response planning.
Specific aims are to: 1) Expand knowledge about the long-term health effects of 9/11 by continuing the WTCHR research program;2) Conduct community activities to respond to the physical and mental health concerns and specific healthcare needs of enrollees and others exposed to 9/11;and 3) Maintain the Registry as a valuable public health resource for future research.
Aim 1 entails conducting priority epidemiological analyses using data from the baseline (2003-04) and follow-up (2006-08) surveys, including analyses to assess risk factors for the development or persistence of serious respiratory and mental health conditions over time;developing and conducting a second follow-up survey of all enrollees using multiple survey modes (paper, web and telephone) to ascertain the health status and 9/11-related healthcare needs of the cohort ~10 years after 9/11; matching with vital records, cancer registries, and the national death certificate system for cancer and mortality assessments;and investigating other potential emerging health conditions through public health surveillance, medical record review and follow-up case-control studies. The WTCHR will also facilitate independent and collaborative 9/11-related research by providing qualified external researchers with de-identified data and access to enrollee subgroups for re

Public Health Relevance

The World Trade Center (WTC) Health Registry contributes to public health by identifying the health effects of the 9/11 disaster and healthcare needs among people who performed rescue and recovery work or lived, worked or attended school in lower Manhattan on 9/11/01. The Registry shares its health findings and recommendations with the 71,000 enrollees, the public, scientists, policy makers, and doctors and others who may treat people affected by 9/11. The Registry also shares information on 9/11- related services and resources and offers referrals to enrollees with healthcare needs.

National Institute of Health (NIH)
National Institute for Occupational Safety and Health (NIOSH)
Special Cooperative Investigations/Assessment of Control/Prevention Methods (U50)
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Special Emphasis Panel (ZOH1-GGB (50))
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Fleming, Roy M
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New York City Health/Mental Hygiene
New York
United States
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