This is a qualitative interview study of girls and women from ages 7-65 years.
The specific aims of the study are: 1. To identify issues of adaptation in girls and women with TS 2. To explore family relationships as experienced by affected girls and women with TS 3. To describe issues of social stigmatization in girls and women with TS 4. To develop suggestions for health care providers based on the needs of girls and women with TS 5. To identify both advantages and disadvantages of living with TS

Agency
National Institute of Health (NIH)
Institute
National Human Genome Research Institute (NHGRI)
Type
Intramural Research (Z01)
Project #
1Z01HG000214-01
Application #
6681724
Study Section
Molecular Genetics B Study Section (MGB)
Project Start
Project End
Budget Start
Budget End
Support Year
1
Fiscal Year
2002
Total Cost
Indirect Cost
Name
Human Genome Research
Department
Type
DUNS #
City
State
Country
United States
Zip Code