This project will explain how the actions taken and decisions made by researchers, policy makers and others, resulted in a variety of recent controversies that have arisen over new technologies and techniques dependent on our knowledge of genetics. It will illustrate how decisions made in the laboratory, clinical, industrial or journalistic settings, can become controversial. This will be done by focusing on the currently active controversies over gene modified foods, gene therapy and the collection and storage of human DNA for future use by privately funded research interests. It will consider the scientific evidence, decisions taken in all facets of the research and data communication processes, and unusual circumstances that the involvement of human test subjects and consumers impose on the researcher, and how all of these factors combine to make scientific activity that would normally be considered appropriate or at least justifiable, a spark for scientific, political and social debate. Its' ultimate goal is the reduction of the frequency of controversy over data, results and technologies dependent on our growing knowledge of genetics. This will be done by offering alternatives for organizing and overseeing research, communicating results and regulating the application of new scientific technology in the laboratory, clinic and industrial research setting, thereby allowing the development of new (knowledge while protecting the freedom and creativity of those involved in generating it.

Agency
National Institute of Health (NIH)
Institute
National Institute of General Medical Sciences (NIGMS)
Type
Predoctoral Individual National Research Service Award (F31)
Project #
5F31GM020933-04
Application #
6684083
Study Section
Special Emphasis Panel (ZRG1-MDCN-7 (02))
Program Officer
Toliver, Adolphus
Project Start
2001-11-16
Project End
2004-05-31
Budget Start
2003-11-16
Budget End
2004-05-31
Support Year
4
Fiscal Year
2004
Total Cost
$14,552
Indirect Cost
Name
Yale University
Department
Genetics
Type
Schools of Medicine
DUNS #
043207562
City
New Haven
State
CT
Country
United States
Zip Code
06520