Participation in cancer clinical trials is an effective means of reducing cancer disparities among Black cancer patients because they provide an opportunity to receive high quality health care from leading healthcare providers and researchers. Much of the research about cancer clinical trial participation among Blacks involves members of the Black community who do not have cancer, or who are not cancer survivors. It is not known what factors actually influence Black cancer patients to participate and remain in cancer clinical trials. Moreover, we do not know the day-to-day experiences of Black adults with cancer as they navigate their way through the clinical trial process. This application proposes a qualitative descriptive study using face-to-face and real-time telephone interviews to identify and describe the factors that Black cancer patients consider important in their decision to participate and remain in research and to provide a rich description of what is actually happening during their clinical research participation. This research is consistent with the mission of NINR to enhance scientific knowledge and reduce health disparities in clinical research.

Public Health Relevance

Few Black adults with cancer participate in research. To reduce cancer disparities among these patients, research is needed to identify and describe the factors that are important to Black cancer patients'research decisions and their day-to-day experiences of being a trial participant.

Agency
National Institute of Health (NIH)
Institute
National Institute of Nursing Research (NINR)
Type
Predoctoral Individual National Research Service Award (F31)
Project #
1F31NR013847-01A1
Application #
8528016
Study Section
National Institute of Nursing Research Initial Review Group (NRRC)
Program Officer
Banks, David
Project Start
2013-07-01
Project End
2015-06-30
Budget Start
2013-07-01
Budget End
2014-06-30
Support Year
1
Fiscal Year
2013
Total Cost
$42,232
Indirect Cost
Name
University of Pennsylvania
Department
Type
Schools of Nursing
DUNS #
042250712
City
Philadelphia
State
PA
Country
United States
Zip Code
19104
Abboud, Sarah; Kim, Su Kyung; Jacoby, Sara et al. (2017) Co-creation of a pedagogical space to support qualitative inquiry: An advanced qualitative collective. Nurse Educ Today 50:8-11