National Epidermolysis Bullosa Registry

Fine, Jo-David J.

Abstract

Funding Agency

• Agency: National Institute of Health (NIH)
• Institute: National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
• Type: Research and Development Contracts (N01)
• Project #: N01AR072233-001
• Application #: 2840014
• Project Start: 1997-05-01
• Project End: 2002-04-30
• Budget Start: 1998-07-14
• Budget End: 1999-09-29
• Fiscal Year: 1998

Institution

• Name: University of North Carolina Chapel Hill
• Department: Dermatology
• Type: Schools of Medicine
• DUNS #: 078861598
• City: Chapel Hill
• State: NC
• Country: United States
• Zip Code: 27599

Publications

Fine, Jo-David; Johnson, Lorraine B; Weiner, Madeline et al. (2009) Epidermolysis bullosa and the risk of life-threatening cancers: the National EB Registry experience, 1986-2006. J Am Acad Dermatol 60:203-11

Fine, Jo-David; Johnson, Lorraine B; Weiner, Madeline et al. (2008) Gastrointestinal complications of inherited epidermolysis bullosa: cumulative experience of the National Epidermolysis Bullosa Registry. J Pediatr Gastroenterol Nutr 46:147-58

Fine, J-D; Hall, M; Weiner, M et al. (2008) The risk of cardiomyopathy in inherited epidermolysis bullosa. Br J Dermatol 159:677-82

Fine, Jo-David; Johnson, Lorraine B; Weiner, Madeline et al. (2008) Cause-specific risks of childhood death in inherited epidermolysis bullosa. J Pediatr 152:276-80

Douglas, Susan A; Yeung, Phil; Daudia, Anurag et al. (2007) Spatial hearing disability after acoustic neuroma removal. Laryngoscope 117:1648-51

Fine, Jo-David; Johnson, Lorraine B; Weiner, Madeline et al. (2007) Tracheolaryngeal complications of inherited epidermolysis bullosa: cumulative experience of the national epidermolysis bullosa registry. Laryngoscope 117:1652-60

Fine, J-D; Johnson, L B; Weiner, M et al. (2005) Pseudosyndactyly and musculoskeletal contractures in inherited epidermolysis bullosa: experience of the National Epidermolysis Bullosa Registry, 1986-2002. J Hand Surg Br 30:14-22

Fine, J-D; Johnson, L B; Weiner, M et al. (2005) Impact of inherited epidermolysis bullosa on parental interpersonal relationships, marital status and family size. Br J Dermatol 152:1009-14

Fine, Jo-David; Johnson, Lorraine B; Weiner, Madeline et al. (2004) Inherited epidermolysis bullosa and the risk of death from renal disease: experience of the National Epidermolysis Bullosa Registry. Am J Kidney Dis 44:651-60

Fine, J-D; Johnson, L B; Weiner, M et al. (2004) Assessment of mobility, activities and pain in different subtypes of epidermolysis bullosa. Clin Exp Dermatol 29:122-7