The pressing significance of the proposed study was underscored with January 2006 release of The Institute of Medicine's Report, """"""""From cancer patient to cancer survivor: Lost in transition"""""""". The Report recommends patients receive a """"""""survivorship care plan"""""""" including information critical to life after treatment. Yet, the Report cites serious shortfalls in follow-up care, suggesting too many survivors are lost in transition after treatment. They move from an orderly care system to a non-system where few guidelines exist to help them into and through cancer survivorship. Of over 10 million cancer survivors in the United States, 2.3 million are (22%) are breast cancer survivors. Forty percent of all female cancer survivors are breast cancer survivors;making them the largest single group of survivors. Projections reflect continued increases in the rate of survivorship in coming years. Left unaddressed, ever increasing numbers will move from an orderly system of care to a 'non system'. Rural breast cancer survivors are particularly vulnerable to being lost in transition. The lack of access to healthcare providers and survivorship services is exacerbated by communication difficulties. These conditions render them at additional risk for poor quality of life (QoL). The overall goal of the proposed project is to determine the effectiveness of the Rural Breast Cancer Survivors (RBCS) Intervention;an intervention specifically designed to address the challenges associated with rural breast cancer survivors'transition from treatment to survivorship. Seven preliminary studies supporting the efficacy of the RBCS lead us to the following aims: (1) Determine the within group effects of the Rural RBSC Intervention on overall QoL. (2) Determine the between group effects of the RBCS Intervention on overall QoL. (3) Determine the within group effects of the RBCS Intervention on physical, psychological, social, and spiritual QoL subdomains. (4) Determine the between group effects of the RBCS Intervention on physical, psychological, social, and spiritual QoL subdomains. (5) Determine baseline characteristics associated with QoL, and explore their confounding or interacting effects with the RBCS Intervention. A GEE analytical approach will be employed. This project stands to provide a structure and the content for assuring rural breast cancer survivors receive information and support necessary to avoid being lost in transition from treatment to survivorship. Such innovation is necessary if the deleterious consequences of survivorship neglect are to be avoided.

National Institute of Health (NIH)
National Cancer Institute (NCI)
Research Project (R01)
Project #
Application #
Study Section
Nursing Science: Children and Families Study Section (NSCF)
Program Officer
Patrick, Heather A
Project Start
Project End
Budget Start
Budget End
Support Year
Fiscal Year
Total Cost
Indirect Cost
University of Alabama Birmingham
Other Health Professions
Schools of Nursing
United States
Zip Code
Meneses, Karen; Gisiger-Camata, Silvia; Benz, Rachel et al. (2018) Telehealth intervention for Latina breast cancer survivors: A pilot. Womens Health (Lond) 14:1745506518778721
Pisu, Maria; Azuero, Andres; Benz, Rachel et al. (2017) Out-of-pocket costs and burden among rural breast cancer survivors. Cancer Med 6:572-581
Pisu, Maria; Meneses, Karen; Azuero, Andres et al. (2016) Variation in resources needed to implement psychosocial support interventions for rural breast cancer survivors. J Cancer Surviv 10:375-83
Schoenberger, Yu-Mei; Benz, Rachel; McNees, Patrick et al. (2016) Patient-centered outcome evaluation of the Rural Breast Cancer Survivors Intervention. Support Care Cancer 24:1841-8
Meneses, Karen; Gisiger-Camata, Silvia; Schoenberger, Yu-Mei et al. (2015) Adapting an evidence-based survivorship intervention for Latina breast cancer survivors. Womens Health (Lond) 11:109-19
Pisu, Maria; Martin, Michelle Y; Shewchuk, Richard et al. (2014) Dealing with the financial burden of cancer: perspectives of older breast cancer survivors. Support Care Cancer 22:3045-52
Azuero, Andres; Benz, Rachel; McNees, Patrick et al. (2014) Co-morbidity and predictors of health status in older rural breast cancer survivors. Springerplus 3:102
Meneses, Karen; Azuero, Andres; Su, Xiaogang et al. (2014) Predictors of attrition among rural breast cancer survivors. Res Nurs Health 37:21-31
Azuero, Andres; Su, Xiaogang; McNees, Patrick et al. (2013) A revision of the quality of life-breast cancer survivors (QOL-BCS) instrument. Res Nurs Health 36:423-34
Meneses, Karen M; Benz, Rachel L; Hassey, Lauren A et al. (2013) Strategies to retain rural breast cancer survivors in longitudinal research. Appl Nurs Res 26:257-62

Showing the most recent 10 out of 11 publications