The ethical, legal, and social issues arising from the use of DNA forensics have not been fully explored. This project aims to investigate the various positions on new and controversial issues surrounding DNA profiling and to educate policymakers so that they better understand privacy and civil liberty issues involved in the application of DNA technology to the criminal justice system. To these ends, a series of small workshops involving ethicists, lawyers, political and social scientists, forensic experts, defense lawyers and prosecutors, and representatives of prisoners and parolees, including members of the major ethnic groups represented in forensic DNA banks, will examine the issues. The project team will collect data, updating information on international laws and regulations and procedures in order to ground workshop discussions. Issues to be addressed include: (1) who should be included in forensic databases; (2) tissue collections as potential databases; (3) sample retention; (4) length of retention; (5) access to forensic DNA databanks; (6) """"""""partial matches,"""""""" and effects on relatives; (7) racial identification using DNA haplotype analysis; (8) resource allocation; (9) federal versus state roles; (10) role of medical personnel; (11) the """"""""autonomy of science;"""""""" (12) uses of samples in medical research; (13) behavioral genetic research; (14) informed consent for research; (15) commercialization; (16) use for epidemiological purposes; (17) fiduciary issues versus the common good; (18) use of DNA collected for identification in mass disasters; (19) national DNA identification cards. Workshop participants will produce position papers for publication in a special issue of the American Society of Law, Medicine & Ethics (ASLME) Journal of Law, Medicine & Ethics, which, in addition to its regular subscribership, will be distributed to policymakers throughout the United States. Presentations will be placed on a website. In order to educate policymakers (especially state legislators), judges, and district attorneys, a national education symposium, in Williamsburg, VA, based on the workshop discussions, will conclude the project, with two scholarships offered to two policymakers from each state.

Agency
National Institute of Health (NIH)
Institute
National Human Genome Research Institute (NHGRI)
Type
Research Project (R01)
Project #
5R01HG002836-03
Application #
6929045
Study Section
Special Emphasis Panel (ZRG1-ELSI-1 (90))
Program Officer
Mcewen, Jean
Project Start
2003-09-19
Project End
2006-07-31
Budget Start
2005-08-01
Budget End
2006-07-31
Support Year
3
Fiscal Year
2005
Total Cost
$513,333
Indirect Cost
Name
American Soc of Law, Medicine & Ethics
Department
Type
DUNS #
079510863
City
Boston
State
MA
Country
United States
Zip Code
02215
Prottas, Jeffrey M; Noble, Alice A (2007) Use of forensic DNA evidence in prosecutors'offices. J Law Med Ethics 35:310-5
Ossorio, Pilar N (2006) About face: forensic genetic testing for race and visible traits. J Law Med Ethics 34:277-92
Berger, Margaret A (2006) The impact of DNA exonerations on the criminal justice system. J Law Med Ethics 34:320-7
Jasanoff, Sheila (2006) Just evidence: the limits of science in the legal process. J Law Med Ethics 34:328-41
Noble, Alice A (2006) DNA fingerprinting and civil liberties. J Law Med Ethics 34:149-52
Knoppers, Bartha Maria; Saginur, Madelaine; Cash, Howard (2006) Ethical issues in secondary uses of human biological materials from mass disasters. J Law Med Ethics 34:352-65
Simoncelli, Tania (2006) Dangerous excursions: the case against expanding forensic DNA databases to innocent persons. J Law Med Ethics 34:390-7
Lazer, David; Mayer-Schonberger, Viktor (2006) Statutory frameworks for regulating information flows: drawing lessons for the DNA data banks from other government data systems. J Law Med Ethics 34:366-74
Gaensslen, R E (2006) Should biological evidence or DNA be retained by forensic science laboratories after profiling? No, except under narrow legislatively-stipulated conditions. J Law Med Ethics 34:375-9
Herkenham, M Dawn (2006) Retention of offender DNA samples necessary to ensure and monitor quality of forensic DNA efforts: appropriate safeguards exist to protect the DNA samples from misuse. J Law Med Ethics 34:380-4

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