Medical errors cause significant mortality and morbidity each year. Although this problem has received national attention, including efforts to encourage patients to speak up about errors, very little work has actively involved patients in preventing, detecting, and recovering from these errors. Patients and their caregivers offer a distinctive perspective on the delivery of care that is rarely captured except through ad hoc dialogue with nursing staff and clinicians. Moreover, patients and caregivers experience cognitive, interpersonal, and system- level challenges that can affect their awareness of potential problems and inhibit their ability to communicate their concerns. Enhancing patients' and caregivers' access to and engagement with meaningful information can help address communication challenges that are often the root cause of many adverse events. Through this application, the investigators seek to understand the information support that hospitalized patients and their caregivers need to play this important safety role. The three aims for this project are to: (1) identify information that would increase patients' and their caregivers' situational awareness as well as enable them to recognize potential safety concerns, (2) identify opportunities to support inpatients and their caregivers in capturing and managing health information, concerns, questions, and customized care needs, (3) determine strategies to support active dialogue among patients, caregivers, and providers around safety-related concerns and the overall care experience. The research team will employ a mixed-methods approach that includes observations, interviews, surveys, and technology probes to develop a set of design requirements for helping patients and their caregivers obtain and track needed information for communicating their safety concerns. These requirements will support the health-care community in engaging patients as safeguards against medical errors and provide a vision for enhancing the overall patient experience using information technology.

Public Health Relevance

Hospitalized patients and their caregivers experience significant challenges with accessing, managing, and communicating information about their care. Our work will help understand and suggest solutions to address these information challenges and support patients and their caregivers in communicating with their clinicians, particularly regarding safety concerns. The results of our work will help enable the design of patient-centered information tools for the hospital environment.

Agency
National Institute of Health (NIH)
Institute
Agency for Healthcare Research and Quality (AHRQ)
Type
Research Project (R01)
Project #
5R01HS022894-05
Application #
9514087
Study Section
Health Care Technology and Decision Science (HTDS)
Program Officer
Bernstein, Steve
Project Start
2014-07-01
Project End
2019-06-30
Budget Start
2018-07-01
Budget End
2019-06-30
Support Year
5
Fiscal Year
2018
Total Cost
Indirect Cost
Name
University of Washington
Department
Type
Other Specialized Schools
DUNS #
605799469
City
Seattle
State
WA
Country
United States
Zip Code
98195
Mishra, Sonali R; Miller, Andrew D; Haldar, Shefali et al. (2018) Supporting Collaborative Health Tracking in the Hospital: Patients' Perspectives. Proc SIGCHI Conf Hum Factor Comput Syst 2018:
Haldar, Shefali; Mishra, Sonali R; Khelifi, Maher et al. (2017) Opportunities and Design Considerations for Peer Support in a Hospital Setting. Proc SIGCHI Conf Hum Factor Comput Syst 2017:867-879
Haldar, Shefali; Filipkowski, Alex; Mishra, Sonali R et al. (2016) ""Scared to go to the Hospital"": Inpatient Experiences with Undesirable Events. AMIA Annu Symp Proc 2016:609-617
Mishra, Sonali R; Haldar, Shefali; Pollack, Ari H et al. (2016) ""Not Just a Receiver"": Understanding Patient Behavior in the Hospital Environment. Proc SIGCHI Conf Hum Factor Comput Syst 2016:3103-3114
Miller, Andrew D; Pollack, Ari H; Pratt, Wanda (2016) Bursting the Information Bubble: Identifying Opportunities for Pediatric Patient-Centered Technology. AMIA Annu Symp Proc 2016:894-903
Pollack, Ari H; Backonja, Uba; Miller, Andrew D et al. (2016) Closing the Gap: Supporting Patients' Transition to Self-Management after Hospitalization. Proc SIGCHI Conf Hum Factor Comput Syst 2016:5324-5336
Miller, Andrew D; Mishra, Sonali R; Kendall, Logan et al. (2016) Partners in Care: Design Considerations for Caregivers and Patients During a Hospital Stay. CSCW Conf Comput Support Coop Work 2016:756-769
Kendall, Logan; Mishra, Sonali R; Pollack, Ari et al. (2015) Making background work visible: opportunities to address patient information needs in the hospital. AMIA Annu Symp Proc 2015:1957-66