Objective: This longitudinal study offers a unique and timely opportunity to develop interventions to enhance the mental health of family caregivers (CGs) of persons with dementia and other chronic health conditions. Interventions will be based on the study's theoretical conceptualization, an expanded version of the Stress Process Model of Family Caregiving (SPM), and corresponding empirical findings. This widely used conceptual framework distinguishes the proposed study from many existing caregiver intervention studies that have been criticized for their atheoretical base. The large and diverse sample of 281 CG / care receiver (CR) dyads (n = 210 African Americans and n = 352 non African American or 562 total respondents) will allow development of interventions that address special needs and circumstances depending upon specific CG characteristics (e.g., cultural/ethnic background, socioeconomic status, kin group, etc.) and point in the caregiving career (e.g. early/later stage). Interventions will target CGs of varying backgrounds (e.g., African American vs. non African American), in diverse living situations (e.g., living with the CR vs. not living with the CR), and from different kin groups (e.g., spouse vs. adult child CGs). Approach: By merging existing longitudinal data, conducting secondary analyses, and collecting two additional waves of data with CG / CR dyads, the study will examine relationships between stressors, interventions, and CG well being and will explore how interrelationships within these constructs change over time. Expected Outcomes: The development of theoretically driven and empirically grounded interventions that have the potential to alleviate CG stress and enhance mental health and well-being. Dissemination: A main component of this study is the development and distribution of educational materials and literature that translate findings for use in practice settings. Products include several educational brochures and fact sheets, an executive summary, and final report. Project materials will be widely disseminated throughout Ohio, California, and the U.S. with the assistance of disease-specific organizations and other targeted national organizations serving practitioners, researchers, and policy makers.

Agency
National Institute of Health (NIH)
Institute
National Institute of Mental Health (NIMH)
Type
Research Project (R01)
Project #
1R01MH070629-01
Application #
6762727
Study Section
Special Emphasis Panel (ZRG1-SPIP (01))
Program Officer
Niederehe, George T
Project Start
2004-04-01
Project End
2008-01-31
Budget Start
2004-04-01
Budget End
2005-01-31
Support Year
1
Fiscal Year
2004
Total Cost
$240,672
Indirect Cost
Name
Benjamin Rose Institute
Department
Type
DUNS #
068903509
City
Cleveland
State
OH
Country
United States
Zip Code
44120
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Moon, Heehyul; Townsend, Aloen L; Dilworth-Anderson, Peggye et al. (2016) Predictors of Discrepancy Between Care Recipients With Mild-to-Moderate Dementia and Their Caregivers on Perceptions of the Care Recipients' Quality of Life. Am J Alzheimers Dis Other Demen 31:508-15
Reamy, Allison M; Kim, Kyungmin; Zarit, Steven H et al. (2013) Values and preferences of individuals with dementia: perceptions of family caregivers over time. Gerontologist 53:293-302
Reamy, Allison M; Kim, Kyungmin; Zarit, Steven H et al. (2011) Understanding discrepancy in perceptions of values: individuals with mild to moderate dementia and their family caregivers. Gerontologist 51:473-83
Judge, Katherine S; Menne, Heather L; Whitlatch, Carol J (2010) Stress process model for individuals with dementia. Gerontologist 50:294-302
Menne, Heather L; Tucke, Shandra S; Whitlatch, Carol J et al. (2008) Decision-making involvement scale for individuals with dementia and family caregivers. Am J Alzheimers Dis Other Demen 23:23-9
Menne, Heather L; Whitlatch, Carol J (2007) Decision-making involvement of individuals with dementia. Gerontologist 47:810-9