Fully half of the U.S. renal transplant waiting list is composed of minority patients. Yet, due in part to blood group and HLA frequencies, African-Americans must wait l year, and Asians 6 months longer than Caucasians for a donated kidney. One solution is to increase organ donation and living-related transplantation among minority groups. This grant utilizes a unique community-based outreach network to deliver information on organ donation and transplantation to the African-American and Asian communities in Seattle and Tacoma. The grant funds the production of an educational video suitable for community and classroom featuring local minority transplant recipients. Also, public service announcements targeting minorities, produced by local minority students, will be shown at the Department of Motor Vehicles offices. A program of instruction will be instituted in local schools. Educational materials will be distributed in local neighborhoods and churches by VISTA volunteers, local residents recruited from the targeted African-American and Asian communities. Neighborhood VISTA volunteers will gain job experience and receive credits toward higher education. A computerized database of community residents will be created to record donation preferences, educational level attained, and medicai histories, data that could be used in future epidemiologic studies on these communities. The efficacy of this educational program will be measured by surveys on attitudes toward donation, by a Washington state organ donor card registry, and by actual donation and transplantation rates by race. This program is a model for community leadership in the development and delivery of health care information which could be applied to other health care issues.

Agency
National Institute of Health (NIH)
Institute
National Institute of Allergy and Infectious Diseases (NIAID)
Type
Research Demonstration and Dissemination Projects (R18)
Project #
7R18AI040674-04
Application #
6355487
Study Section
Allergy & Clinical Immunology-1 (AITC)
Program Officer
Prograis, Lawrence J
Project Start
1997-09-15
Project End
2002-08-31
Budget Start
2000-07-01
Budget End
2000-08-31
Support Year
4
Fiscal Year
1999
Total Cost
Indirect Cost
Name
The Hope Heart Institute
Department
Type
DUNS #
City
Seattle
State
WA
Country
United States
Zip Code
98122
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Wong, Kristine A; Cardenas, Vicky; Shiu-Thornton, Sharyne et al. (2009) How do communities want their information? Designing educational outreach on organ donation for Asian Americans. Prog Transplant 19:44-52
Thornton, J Daryl; Curtis, J Randall; Allen, Margaret D (2006) Completion of advanced care directives is associated with willingness to donate. J Natl Med Assoc 98:897-904
Weaver, Marcia; Shiu-Thornton, Sharyne; Spigner, Clarence et al. (2003) Organ donation among Asians and Pacific Islanders: preliminary research findings. J Health Care Poor Underserved 14:182-93
Weaver, M; Spigner, C; Pineda, M et al. (2000) Knowledge and opinions about organ donation among urban high school students: pilot test of a health education program. Clin Transplant 14:292-303
Spigner, C; Weaver, M; Pineda, M et al. (1999) Race/ethnic-based opinions on organ donation and transplantation among teens: preliminary results. Transplant Proc 31:1347-8
Weaver, M; Spigner, C; Pineda, M et al. (1999) Impact of school-based teaching on students' opinions of organ donation and transplantation. Transplant Proc 31:1086-7