A chronic illness, such as HIV infection, typically creates large amounts of uncertainty for patients (e.g., ambiguity of symptoms, unpredictability of disease progression, lack of information about treatments). The proposed project is designed to test a model of patient uncertainty as well as to determine how HIV/AIDS patients engage in coping and psychosocial adaptation through communication behaviors.
The specific aims are (1) to determine the sources of uncertainty and information used by persons with HIV or AIDS, (2) to identify the role of """"""""stage of illness"""""""" in determining the sources of uncertainty and information seeking preferences among persons living with HIV or AIDS, (3) to determine the effectiveness and durability of an educational intervention designed to facilitate uncertainty management, and (4) to assess covarying influences on uncertainty management, such as uncertainty appraisal, disease progression, socioeconomic status, and demographics. In Study I, focus group interviews will be used to assess sources of uncertainty, sources of information, preferences for information, barriers to information seeking, and strategies for coping with uncertainty, and the influence of stage of illness on assessments of uncertainty. Study II is an intervention with a pretest-posttest control group design with two levels of treatment (educational intervention vs. no educational intervention). Measures will be taken at baseline, and at 3, 6, and 9 months past baseline. The intervention will run for eight sessions (one and one-half hours each) and is designed to facilitate uncertainty management through (a) constructing normative frameworks by providing basic illness and treatment information and (b) promoting adaptive coping through information-seeking skills training.

Agency
National Institute of Health (NIH)
Institute
National Institute of Nursing Research (NINR)
Type
First Independent Research Support & Transition (FIRST) Awards (R29)
Project #
5R29NR004376-06
Application #
6393008
Study Section
AIDS and Related Research Study Section 6 (ARRF)
Program Officer
Hare, Martha L
Project Start
1997-09-01
Project End
2003-07-31
Budget Start
2001-08-01
Budget End
2003-07-31
Support Year
6
Fiscal Year
2001
Total Cost
$79,092
Indirect Cost
Name
University of Illinois Urbana-Champaign
Department
Other Health Professions
Type
Schools of Arts and Sciences
DUNS #
041544081
City
Champaign
State
IL
Country
United States
Zip Code
61820
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Brashers, Dale E; Neidig, Judith L; Russell, Jane A et al. (2003) The medical, personal, and social causes of uncertainty in HIV illness. Issues Ment Health Nurs 24:497-522
Brashers, D E; Neidig, J L; Cardillo, L W et al. (1999) 'In an important way, I did die': uncertainty and revival in persons living with HIV or AIDS. AIDS Care 11:201-19
Brashers, D E; Neidig, J L; Reynolds, N R et al. (1998) Uncertainty in illness across the HIV/AIDS trajectory. J Assoc Nurses AIDS Care 9:66-77