An effective response to the public health problem of children affected by fetal alcohol spectrum disorders (FASD) lies in accessible diagnosis and systematic referral to scientifically-evaluated community-based interventions. FASD intervention that measurably improves childhood outcome may prevent later debilitating and costly secondary conditions. Most children with FASD are identified in elementary school-a pivotal time when neurodevelopmental deficits and disruptive behavior among children with prenatal alcohol exposure commonly emerge. Their parents have many unmet intervention needs, and struggle to ? attain positive parenting attitudes and effective parenting skills/knowledge. Yet FASD research has ? identified a nurturing, appropriately structured environment in childhood as an important protective ? influence for positive outcome, so tailored family-focused intervention is needed. For parents raising children with FASD who show early, serious challenging behavior (and signs of family/school disruption), efficacious intervention is crucial. To meet family needs, a new behavioral consultation intervention (called Families Moving Forward (FMF)) was developed and tested, with promising initial efficacy findings. The next phase in programmatic research involves transitioning the FMF intervention to the community in order to assess feasibility and effectiveness. The University of Washington FAS Diagnostic & Prevention Network (FAS DPN), Children's Hospital and Regional Medical Center (CHRMC) and a community family services and training agency, called the Institute for Family Development (IFD), will work together to implement and ? assess a community-based FMF intervention. FMF intervention will be provided to 30 families of children with FASD. Concurrently, statewide FASD diagnostic outreach, identification, and referral activities will be further developed and documented, CDC collaboration will be carried out, and professional education (with additional partnership by NOFAS Washington State, a grassroots family support organization) will occur. ? ?

Agency
National Institute of Health (NIH)
Institute
Centers for Disease Control and Prevention (NCBDD)
Type
Research Project--Cooperative Agreements (U01)
Project #
1U01DD000038-01
Application #
7073615
Study Section
Special Emphasis Panel (ZCD1-PXJ (01))
Program Officer
Irannejad, Nassi
Project Start
2005-09-30
Project End
2009-09-29
Budget Start
2005-09-30
Budget End
2006-09-29
Support Year
1
Fiscal Year
2005
Total Cost
$300,000
Indirect Cost
Name
Seattle Children's Hospital
Department
Type
DUNS #
048682157
City
Seattle
State
WA
Country
United States
Zip Code
98105
Petrenko, Christie L M; Pandolfino, Mary E; Quamma, Julie et al. (2017) Emotional Understanding in School-Aged Children with Fetal Alcohol Spectrum Disorders: A Promising Target for Intervention. J Popul Ther Clin Pharmacol 24:e21-e31