Abstract

The Indigenous linguistic and cultural concepts of heritability and comprehension of genomics research in Nigeria (INDIGENE) study is a project designed to evaluate the use of linguistic and culturally derived concepts of genomics and heritability in an indigenous African population and use this to develop enhanced consent forms. The project will then test the impact of these enhanced consent forms on the comprehension of genomics research, diabetes mellitus and principles of informed consent within the context of an H3Africa Diabetes Mellitus Genomics research project in Nigeria. The impact of the enhanced form on participants' comprehension and satisfaction will also be evaluated

Public Health Relevance

Indigenous linguistic and cultural concepts of heritability and comprehension of genomics research in Africa (INDIGENE) study is a study of the impact of using enhanced consent forms on the comprehension of informed consent in genomics research of diabetes mellitus

  Funding Agency

Agency
National Institute of Health (NIH)
Institute
National Human Genome Research Institute (NHGRI)
Type
Research Project--Cooperative Agreements (U01)
Project #
5U01HG007654-02
Application #
8904698
Study Section
Special Emphasis Panel (ZHG1-HGR-P (J2))
Program Officer
Madden, Ebony B
Project Start
2014-08-05
Project End
2017-07-31
Budget Start
2015-08-01
Budget End
2016-07-31
Support Year
2
Fiscal Year
2015
Total Cost
$96,500
Indirect Cost
$7,148

  Institution

Name
Institute of Human Virology
Department
Type
DUNS #
850470568
City
Abuja
State
Country
Nigeria
Zip Code
90024-6

  Publications

Kaye, Jane; Terry, Sharon F; Juengst, Eric et al. (2018) Including all voices in international data-sharing governance. Hum Genomics 12:13