The Rochester Prevention Research Center (RPRC) will develop a national center of excellence for health promotion and disease prevention research in persons who are deaf or hard of hearing (D/HOH). This Center would be the first of its kind nationally and internationally. Rochester, New York likely has the highest prevalenceof D/HOH people inthe U.S. and takes advantage of the many resources, institutions, and organizations servicing our D/HOH community.The mission of the RPRC is to promote health and prevent disease in the D/HOH population through community-participatory research. The mission includes identification and prioritization of the D/HOH community's health needs, development of effective and inclusive interventions, accessible communication and dissemination of the Center's findings, and evaluation of the Center to assure its contribution to the health of local, state, national and international D/HOH populations and to the National Prevention Research Center Program. To carry out this mission, the RPRC will achieve five specific aims. First, an infrastructure of personnel, facilities, and collaborators will be organized to develop and carry out evaluation strategies to assess RPRC performance. Second, partners and collaborators wil lbe organized and mobilized for participation in the planning and implementation of a meaningful research plan. Third, the five-year research plan will be carried out, firs tidentifing health needs and risk factors in the D/HOH population and developing strong research methodology. Interventions will be developed and testedfor effectivenessinthe D/HOH community.Fourth,usingthe PRC Information System, RPRC tools,interventions,and programs will be communicated and disseminated to local, national, and international audiences. Finally, training programs will be organized and implemented for practitioners, researchers ,and students at all levels to expand the research community studying D/HOH health. The RPRC will serve as a model for other Centers which target populations with disabilities.

Agency
National Institute of Health (NIH)
Institute
National Center for Chronic Disease Prev and Health Promo (NCCDPHP)
Type
Health Promotion and Disease Prevention Research Centers (U48)
Project #
5U48DP000031-03
Application #
7119241
Study Section
Special Emphasis Panel (ZDP1-AJS (01))
Project Start
2004-09-30
Project End
2009-09-29
Budget Start
2006-09-30
Budget End
2007-09-29
Support Year
3
Fiscal Year
2006
Total Cost
$950,950
Indirect Cost
Name
University of Rochester
Department
Public Health & Prev Medicine
Type
Schools of Dentistry
DUNS #
041294109
City
Rochester
State
NY
Country
United States
Zip Code
14627
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Dams-O?Connor, Kristen; Mellick, Dave; Dreer, Laura E et al. (2017) Rehospitalization Over 10 Years Among Survivors of TBI: A National Institute on Disability, Independent Living, and Rehabilitation Research Traumatic Brain Injury Model Systems Study. J Head Trauma Rehabil 32:147-157
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McKee, Michael M; McKee, Kimberly; Winters, Paul et al. (2014) Higher educational attainment but not higher income is protective for cardiovascular risk in Deaf American Sign Language (ASL) users. Disabil Health J 7:49-55
Pollard Jr, Robert Q; Sutter, Erika; Cerulli, Catherine (2014) Intimate partner violence reported by two samples of deaf adults via a computerized American sign language survey. J Interpers Violence 29:948-65
McKee, Michael; Schlehofer, Deirdre; Thew, Denise (2013) Ethical issues in conducting research with deaf populations. Am J Public Health 103:2174-8
Chin, Nancy P; Cuculick, Jessica; Starr, Matthew et al. (2013) Deaf mothers and breastfeeding: do unique features of deaf culture and language support breastfeeding success? J Hum Lact 29:564-71
McKee, Michael; Thew, Denise; Starr, Matthew et al. (2012) Engaging the Deaf American sign language community: lessons from a community-based participatory research center. Prog Community Health Partnersh 6:321-9
Mathews, Jennifer L; Parkhill, Amy L; Schlehofer, Deirdre A et al. (2011) Role-reversal exercise with Deaf Strong Hospital to teach communication competency and cultural awareness. Am J Pharm Educ 75:53
Ton, Thanh G N; Fogg, Thomas T; Fong, Chin-To et al. (2011) Knowledge, perception, and behaviors of relatives of people with premature heart disease: a systematic literature review. Circulation 124:958-64

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