This project is examining protections that should be afforded to communities in research. It entails two phases of work. In the first phase, existing protections for communities have been identified and analyzed. This analysis indicates that there are 17 different declarations about protecting communities that delineate five broad groups with a total of 23 different protections. These protections are appropriate to aboriginal communities, such as Native American communities, but do not necessarily seem appropriate to other types of communities. The second phase focuses on determining what protections are appropriate for different types of communities. It entails four steps: (1) Delineating the key characteristics that define communities. (2) Use these characteristics to develop a typology of different types of communities. This step recognizes that the term """"""""communities"""""""" encompasses a diverse set of groups that are not necessarily homogenous. Seven different types of communities are identified. (3) Delineating the 23 protections identified for the aboriginal communities and indicating the type of characteristics necessary to implement each protection. (4) The different types of communities are linked to appropriate protections through the characteristics that are shared, permitting the definition of the types of protections in research that are appropriate to the different types of communities. The first phase of research has been submitted for publication; the second phase of research is ongoing

Agency
National Institute of Health (NIH)
Institute
Clinical Center (CLC)
Type
Intramural Research (Z01)
Project #
1Z01CL010509-02
Application #
6435360
Study Section
(CBD)
Project Start
Project End
Budget Start
Budget End
Support Year
2
Fiscal Year
2000
Total Cost
Indirect Cost
Name
Clinical Center
Department
Type
DUNS #
City
State
Country
United States
Zip Code