The purpose of this study is to develop and assess a new approach to self-management that recognizes that many patients with chronic conditions must manage their condition continuously and often do so within a social context. As care shifts to home- and community-based settings, multiple forms of consumer health information technology (IT) are being developed to support patients with their self-management responsibilities. In particular, remote monitoring systems-in which clinically relevant data are captured, analyzed, and converted into medically relevant information-carry potential for use in multiple chronic diseases that require constant oversight. Furthermore, consumer health IT is being advanced that is responsive to the fact that self- management rarely occurs in isolation; rather, patients often rely on others including a primary informal caregiver. Therefore, there is a need to create and evaluate approaches to self- management that integrate consumer health IT interventions facilitating continuous monitoring and both individual and group decision-making. This proposal seeks to refine and assess such an approach to self-management called CloudConnect, with two specific aims: 1) explicate patient and informal caregiver needs and preferences relevant to the technology core of this self-management approach and 2) evaluate the impact of this self-management approach on engagement and clinical outcomes. The proposed research addresses questions that relate to the design and performance of a self-management approach for Type 1 Diabetes that integrates remote monitoring of both physiological parameters and patient generated data, informatic processing of multiple data types to assess near-term risk of adverse events, computation of risk profiles that identify linkages between behavior and self-treatment outcomes, clinical decision support, and health information communication systems, all with a focus on dyads of adolescent patients and their local care givers. The first of two studies associated with this proposal is a needs assessment study that reveals patients' and primary informal caregivers' needs/preferences for the technology core of Cloud Connect. The second study is a randomized control trial that assesses CloudConnect in terms of patient engagement, dyad engagement, and clinical outcomes as well as the relationships among these outcome measures for adolescents with diabetes. The results of this project will inform the design information technology that improves engagement and clinical outcomes for patients who require continuous monitoring and who engage an informal primary caregiver in self-management outside clinical settings.
As care shifts to home- and community-based settings, multiple forms of consumer health information technology (IT) are being developed to support patients with their self-management responsibilities. In particular, remote monitoring systems?in which clinically relevant data are captured, analyzed, and converted into medically relevant information?carry potential for use in multiple chronic diseases that require constant oversight. This research addresses the need to create and evaluate approaches to self-management that integrate consumer health IT interventions facilitating continuous monitoring and both individual and group decision-making.
| DeBoer, Mark D; Valdez, Rupa; Chernavvsky, Daniel R et al. (2017) The Impact of Frequency and Tone of Parent-Youth Communication on Type 1 Diabetes Management. Diabetes Ther 8:625-636 |
