Approximately 10%-15% of children in the U.S. have some type of chronic health impairment; most are cared for at home by their families. Nurses have a longstanding commitment to providing family centered care. Ideally, such care is informed by research on how families respond to health care situations. The overall purpose of this proposal is to extend the analysis of an existing data set that includes qualitative and quantitative material on how individual members and the family unit as a whole respond to a child's chronic illness. The ongoing analysis of this data set. which includes data from 63 families, focuses on the conceptualization of family management style. The continuation study addresses substantive, theoretical, and methodological issues identified during the course of the initial analysis.
The specific aims are to: (1) Combine qualitative and cluster analysis techniques to refine further and validate family management styles identified through qualitative analysis in the original study, (2) Identify qualitative themes that characterize and differentiate how subject groups (mother, fathers, ill children, siblings) define and manage chronic illness, (3) Compare the impact of illness across subject groups (mothers, fathers, ill children, siblings) using data from interviews and standardized measures, (4) Identify familial and individual defining and managing themes from the interview data which differentiate children at risk for behavioral and social competence problems from whose who are not at risk, (5) Differentiate defining themes, illness management behaviors, individual response, and family response issues that cut across chronic illnesses from those that are associated with a specific illness, and (6) Evaluate the congruency and complementarity of data obtained from standardized measures and interviews for each subject group.

Agency
National Institute of Health (NIH)
Institute
National Institute of Nursing Research (NINR)
Type
Research Project (R01)
Project #
5R01NR001594-05
Application #
3391516
Study Section
Nursing Research Study Section (NURS)
Project Start
1987-05-01
Project End
1993-08-31
Budget Start
1991-09-01
Budget End
1993-08-31
Support Year
5
Fiscal Year
1991
Total Cost
Indirect Cost
Name
University of Illinois at Chicago
Department
Type
Schools of Nursing
DUNS #
121911077
City
Chicago
State
IL
Country
United States
Zip Code
60612
Knafl, George J; Knafl, Kathleen A; McCorkle, Ruth (2005) Mixed models incorporating intra-familial correlation through spatial autoregression. Res Nurs Health 28:348-56
Knafl, K A; Ayres, L; Gallo, A M et al. (1995) Learning from stories: parents' accounts of the pathway to diagnosis. Pediatr Nurs 21:411-5
Breitmayer, B J; Ayres, L; Knafl, K A (1993) Triangulation in qualitative research: evaluation of completeness and confirmation purposes. Image J Nurs Sch 25:237-43
Gallo, A M; Breitmayer, B J; Knafl, K A et al. (1993) Mothers' perceptions of sibling adjustment and family life in childhood chronic illness. J Pediatr Nurs 8:318-24
Breitmayer, B J; Gallo, A M; Knafl, K A et al. (1992) Social competence of school-aged children with chronic illnesses. J Pediatr Nurs 7:181-8
McCarthy, S M; Gallo, A M (1992) A case illustration of family management style. J Pediatr Nurs 7:395-402
Obrecht, J A; Gallo, A M; Knafl, K A (1992) A case illustration of family management style in childhood end stage renal disease. ANNA J 19:255-9;discussion 260
Knafl, K; Breitmayer, B; Gallo, A et al. (1992) Parents' views of health care providers: an exploration of the components of a positive working relationship. Child Health Care 21:90-5
Gallo, A M; Breitmayer, B J; Knafl, K A et al. (1992) Well siblings of children with chronic illness: parents' reports of their psychologic adjustment. Pediatr Nurs 18:23-7
Gallo, A M; Breitmayer, B J; Knafl, K A et al. (1991) Stigma in childhood chronic illness: a well sibling perspective. Pediatr Nurs 17:21-5

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